Ugliness of Epstein Barr

After many doctor visits starting May 28th’s visit to the ER for a now known pylonephritis [kidney infection] I have missed the past four days of work due to fever averaging 102.5* then breaking, then back then breaking, then it comes back.

Two Wednesday’s ago after one of my many doctor visits of which she went ahead and tested me for Mono [negative] and Strep [negative] she went ahead and tested me for Epstein Barr – what she called “Mono’s uglier and scarier sister.” Last Friday the left side of my back began aching. [My fevers were still only ranging in the 99.5* – 99.9* area.] That night coming home I found something from my doctor and it was conclusive. I have Epstein Barr.

It meant nothing to me. The directions said to rest, take a multivitamin and avoid extra activities. Well, I couldn’t stop there so onto the internet I come. Spleens can become enlarged in over 50% of the cases, and swollen brain can occur – which could explain my headaches. But other than that I began going to bed earlier and taking it easy. Until last Thursday.

Last Thursday, with a fever higher than usual I went to work and survived two hours. I drove home knowing I was going to pass out, throw up or get dizzy and crash. When I got home my fever was 102.8* and I went to bed. Since Thursday I’ve been taking ibuprofin every 4 hours. If I neglect every 4 hours on the nose I spike. Last night I neglected and like clockwork, the chills and taking to the bed and then 2 ibuprofin and it never went down until I broke it with the blankets. Then my clothes were drenched and so were my bedsheets. Perfect for more chills.

Today I am going to the doctor AGAIN because I think there has to be more to it. Maybe not but because my doctor implied the reason I was getting every little thing [pylonephritis – which i’d never had before], sore throat, ear ache, low fever that my immune system could be dragging which is why she tested me for EBV in the first place. I hope I have the flu – piggybacking off EBV – or something an antibiotic can help with.

I can’t keep going on this way. As an adult I have never been this sick. It’s good I can get on the internet and mess around on the computer from time to time. I am equally grateful I have my friend who will be picking me up to take me to the doctor at 10:30am.

168 thoughts on “Ugliness of Epstein Barr

  1. Anonymous August 1, 2005 at 11:12 am

    someone loves you and is trying to take care of you. C

    • Dewi December 25, 2015 at 9:50 am

      Can we all just calm down.This is the ‘smack my bitch up’ video (even down to the puking mid way thugorh) but not shot half as well. The post on it is shocking. Arsene Wenger looks even more 2D than he does in real life, and the stadium effects are similar to something you’d find on Fifa 05. The whole thing looks animated.The thought I don’t mind, but why the fuck choose Guy Richie of all people? Pick somebody who knows post and how to get the most realistic results. Daniel Kleinman would have made this ad 10 times better…

  2. Samsara August 3, 2005 at 10:11 am

    Thank you for taking care of me C. I love you too. [I am so grateful for you and my friends T and P!] PS. You aren’t trying. You are.

  3. Shae May 5, 2006 at 12:59 pm

    Samsara, there is a cure for epstein barr virus known as Cytotoxic T Cell treatment. It has been known to resolve the virus. Baylor Hospital in Houston is conducting a study presently for people who have it. You you reserch this info on the web.

  4. samsara June 4, 2006 at 11:01 pm

    Shae I have been remiss in my research or thanks for this news. I want you to know I have plans to let my doctor know of it once the opportunity arises. I don’t have your email so if you pop in, thanks. :-)

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  5. samsara April 29, 2008 at 1:09 am

    Update in 2008.

    I have researched since this diagnosis in 2005 and have discovered EBV to be related or suspected of being related to Chronic Fatigue Syndrome.

    After my divorce, my ex-husband apologized for his attorney bringing up to the Judge that I slept so often because my husband was then diagnosed with EBV. [I gave it to him because I was infected when I was 17 after doing research in discovering that the reason I broke out in a red rash after the doctor had given me penicillin is because he’d misjudged what I had.]

    I have the CHRONIC EBV – which is no big deal to me.The world is who seems to have developed the problem with it. :) The world often looks down on what they cannot understand.

    Resources:
    Chronic Fatigue or Chronic EBV Inforcenter
    Center for Disease Control – EBV and Chronic Fatigue

    I just finished up an article in which I was pseudo-villified for going to sleep while my beloved’s parents were here so I come back here to make these declarations for people who come looking for Epstein Barr information! :)

    Oh, sure. Here’s the Article. Taking care of Ourselves – Physically, Emotionally, Mentally And it’s applicable whether you have Epstein Barr, are a Highly Sensitive Person, have cancer, fibromyalgia, ADD or any other illness that may be a factor in how you function with the outside world. Remember. If we do not put ourselves first and wait for others to do it, we may always be last! So take care of yourself. You *are* the most important person!

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